Books And Films
RICHOUT - Make a Difference
In India, we do not have much literature on disability. We may find some articles /books written by parents of children with special needs or the person him/herself. "REACHOUT" Make a Difference is a simple holistic guide for families of special Adults written by Rekha Balgi is a bit different because she is a sibling & also a carer.
In any programme dealing with disability if you come across a cheerful smiling lady along with a smiling adult in his fifties, this duo is sure to be Rekha Balgi & her brother Girish Balgi who is mentally challenged. Rekha is a special educator, trained counsellor & a Yoga instructor. She is the Founder of ReachOut which was formed in 1997 that organises activities to create Inclusion & Awareness. Recently she has published this above mentioned guide which addresses issues those constantly cloud the minds of the carers of people with special needs. What After Us?
What After Us? was the driving question led Rekha towards research and to find options. The findings in this book are based on interviews, discussions & feedback from carers.
This book is very methodically divided in to Four Sections. A) An Intro B) Dealing with the Present has some important sub sections like 1.Family & Home 2. Medical Issues & Guidance 3. Insights & Guidance 4. Rehabilitation C) Pathways to Better Tomorrow deals with very important issues in adult life of a person with special needs & mentally challenged like Legal Guardianship, Financial stability, Writing a will, Health Schemes etc.
D) Resources.
Do contact Rekha Balgi for your copy on rekhabalgi@gmail.com or
contact us on childraisetrust@gmail.com>
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Journey to Empowerment Resource Guide - Release of 3rd Edition
We are very happy to share that our Resource Guide for Children with Special Needs 'Journey to Empowerment' has been published. This is our 3rd Revised Edition.
This Resource Guide has all the information very systematically divided in to Ten Chapters.
1) Introduction 2)Orientation 3) Education 4) Vocation 5) Rehabilitation 6) Recreation 7) Recondition, 8) Contribution 9) Legislation & 10) Inclusion.
Introduction has definitions, info about Rights of People with Disability Law 2016 etc. Orientation has basic information about various disability conditions like Intellectual Disability, Autism, Cerebral Palsy, Visual, Hearing, Speech impairment etc. Education contains disability wise lists of special schools in Mumbai & other metro cities. Similarly, Vocation has lists of sheltered workshops etc.
Rehabilitation section is very important section & has information about child guidance centres, support groups, marriage bureaus, Life Care Centres & much more information. Recreation tells about organisations, individuals who are working with children & adults with special needs in the field of sports, art/drama etc.Recondition will clear many of our misconceptions about disability.
Contribution explains about volunteering, crowd funding. Legislation is a very important section that tells about latest changes in our legal structure, which are the laws that govern the disability sector, schemes for the people with disability.Inclusion stresses upon participation of person with disability in the mainstream society.
In the Foreword for the Resource Guide Dr. Dharmishtha Mehta (Former Reader, Special Education Department, S.N.D.T. Women's University, Juhu) says that this Resource Guide serves as a Light-house amidst the unclear waters of ignorance, feeling of being lost, confused or unguided.
Do Contact us to get your copy of Resource Guide 'Journey to Empowerment' Kavita Shanbhag - ChildRaise Trust, Founder & Managing Trustee
Mobile No- 09820256731 Email- childraisetrust@gmail.com
Donation Cost- Rs. 500/- (Courier Cost extra)
Payment can be made by Cash, Cheque, NEFT.
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| English
Books |
Tornado - A parent manual to manage the ADHD child
By Mrs. Samindara Hardikar - Sawant, Illustrated by Ms. Kuntal Doshi by Disha Publication
Epilepsy In India
By B.S. Singhal and Devika Nag
This book has been published by Indian Epilepsy Association and Lenbrook Pharmaceuticals. This book contains information on diagnosis, management, social reforms and the provisions in the legal system and other issues, in relation to epilepsy in India.
'Take Me Out For Dinner Tonight'
By Dr.Ajay Sodani.
'Mirgi- Kuchh Kahaniya' & 'Mirgi ka Such'
By Dr.Shailendra Jain
What Am I
is based on the life of Siddhi Desai. The book is written by Vrinda Bhargava - a college teacher in Nasik. The book is hailed Inspirational by none other than our President-Pratibha Patil. She adds that Siddhi is a very brave girl & has fought like a warrior.Siddhi may not have eyesight but has vision. President hopes that all girls & boys grow up with her kind of ambition, courage & hope.
Beyond Those Walls of Silence
a real life experience of helping the deaf speak By Lalini Rajasuriya ( Amra Publishers-Chennai). A poignant story of a mother whose consistent love ,insight transformed profoundly deaf child Mahinda in to a robust & creative young man leading a normal life. The book is invaluable reading for all parents working with deaf children.
Journey
Towards Promotion of Inclusive Education in India
This book,
published by he National Centre for Promotion of Employment for
Disabled People (NCPEPP), documents a silent revolution:
developments over a period of only a few months but to
have a deep impact on the education and therefore on the
empowerment of India's 70 million disabled people. |
From Darkness to Light,
By Dheera Kitchlu
Stories of uncommon courage of
Blind Women Achievers. Published by National Association of Bild
(NAB) and Committee for Achievement of the Status of Blind Women (CASBW)
Note : Braille and audio versions available with NAB. |
For
a Secure Tomorrow, Damodar Tilak
Help for Middle Income Group (MIG)
families to adopt
the small savings route to provide for the future financial needs of a
child with disability.
(For the entire book, click on
'Financial Planning' on home page)
Read More |
Conquering
Epilepsy, Carol D'Souza
Personal stories of people
conquering Epilepsy: Finding the Rainbow after the storm
Read More |
Autobiography of Susan Hampshire
Account
by an actress with learning disabilities |
Expect the
Unexpected: My Dreams and How I Got There.
Autobiography by Larry Espling,
a person with cerebral palsy |
Raymond's Room
by Dale Dileo www.raymondsroom.com
Dale calls people with disabilities as society's 'hidden citizens'. |
Children and Learning
Difficulties, Onita Nakra |
No One's
Perfect
by Hirotada Ototake, disabled author with tetra amelia, a
condition where almost no arms or legs, wrote 'No One's Perfect' -
an instant bestseller in Japan. He was appointed as a full time
elementary teacher in Tokyo.
Children with Learning Difficulties - How to Help
: A Guide for Parents & Teachers
by Bela Raja, Published by Vakils, Rs. 295/-
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Marathi Books |
AUTISM EK BIKAT VAAT TE VAHIVAAT
AUTISM EK BIKAT VAAT TE VAHIVAAT – is to understand, communicate and handle the child on diagnosis of Autism. The author Sunita S Lele explains in this book not only the experiences that she shared with all Autistic individuals but also writes the practical and theoretical method. Although, number of Autistic individuals is very large, this book is mainly for families and professionals working with children 8 to 9 years old of age.
This book is divided into three sections and priced at Rs. 230/-. Each section contains 4 to 5 topics explaining theoretical method and practical for self-study.
This book is available for purchase at:
Forum For Autism
# 1, Sorab House
6 Garden Road
Colaba, Mumbai 400039
T. 022-32949595
Email: forumforautism@gmail.com
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Andhlyache Dole
Writer - Ved Mehta , Translation - Shanta Shelke.
This is a translation of a book by Autobiography –face to Face of Ved Mehta. This is a very inspiring tale of a very determined Ved who has tremendous confidence, his intense search for knowledge & passion to live life to the fullest.
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Ek Purna - Apurna by Neela
Satyanarayan
Engaging
travails of a high placed official who is a mother of Chaitanya - boy
with Downs Syndrome. The book portrays stages from denial to acceptance.
Granthali Prakashan , Mumbai, Rs 125/- |
Jhunj Niyatishi by Pratibha Hampras
Struggle of a Aurangabad based mother to raise a son with Cerebral Palsy
Saket Prakashan, Rs 140/- |
Aapli Mule Ka
Bighadtat? by Dr. Anuradha Sovni & Madhuri Bhide.
Unmesh
Prakashan, Rs 60/- |
Phite
Andharache Jale by Bhalchandra Karmarkar
Struggle of Parents with their
daughter Vallary- a girl with cerebral palsy, her progress and
challenges.
Published by Mehta Publishing House Price- Rs. 120/- |
Shishir Palvi
Heart
rendering experiences narrated by parents of special children. |
Apwadatmak Mulanche Manas-shastra, Prema Kale |
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| Braille, Audio Books |
Marathi & English Cookery
Books
Available in Braille by cookery expert Amar Rane, a person with
disability himself. Audio cassettes are also available. |
From Darkness to Light, by Dheera Kitchlu
Stories of uncommon courage of
Blind Women Achievers. Published by National Association of Bild
(NAB) and Committee for Achievement of the Status of Blind Women (CASBW)
Note : Braille and audio versions available with NAB. |
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| Magazines / Newsletters |
| Marathi
Magazines |
‘Shabd Deepotsav 2006’ Diwali
Ank, edited by Meghana Pethe
‘Aaglya Veglya Mulanna Wadhavtana’: Section on Raising Different
children having Special Needs. Articles by Pratima Joshi, Anil Joshi,
Kavita Shanbhag, Smita Paranjpe and others.
Sadhana Saptahik June 10th
2006 issue
Mulinche Ani Apanganche Shikshan Visheshank, Editor-Narendra Dabholkar
Lalana Diwaali Ank 2004: Adhunik Mother - Kavita
Shanbhag: articles on epilepsy
Sakal Diwali Ank 2004 : Maitri Epilepsy shi by Yashoda Wakankar-articles
on epilepsy |
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| English Magazines |
Parivaar
Quarterly newsletter by National Federation of Parent's Association (NFPA) for Person's with Mental Retardation, Autism, C.P. & Multiple Disabilities.
Sparsh Magazine
Sparsh is produced twice year by
Sense International(India),
2nd floor, Admin block,
opp. Indian Institute of Management (IIM),
Vastrapur, Ahmedabad-380015
Phone- 91-79-26301282,
Fax- 91-79-26301590
Disability World - www.disabilityworld.org
A bi-monthly web-zine of International Disability news & views.
Autism Network is published by Action For Autism.It's aim is to provide information on education,therapy,& care for people with autism.
Barrier Break Technologies have introduced a quarterly magazine named
A3-Ability, Adaptability & Accessibility. It endeavours to provide information,tips & news.
Details - www.barrierbreak.com
Deaf Way-Monthly publication by Arun Rao & Christina Rao Parents of a deaf girl. Details log on to www.thedeafway.org. Ezine is available.
Karavalamban - NIMH newsletter. Their objective is to reach out to professionals,parents,NGOs with information on disability.
Neworld-Voice of Paraplegics newsletter towards an attempt to create a network & support to all SCI (Spinal Cord Injury),therapists,doctors,caregivers.ezine available.
Details -
www.ninafoundation.org
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Book Reviews
The National Trust has published, in public interest, a booklet under this
title to help families in the middle income group (in particular) to adopt
the small savings route to provide for the future financial needs of their
disabled wards.
The booklet is authored by Damodar Tilak. He is the father of an only
daughter who is a person with cerebral palsy and mental retardation.
In the words of Smt. Aloka Guha, Chairperson of the National Trust, the
booklet describes personal experiences of Mr. Tilak and his own preferred
solutions to the problems that he and his wife have faced. The publication
and subsequent dissemination of these personal experiences is expected to
help others to increase their range of options for securing a better, and
safer future, for their children with disabilities.
For more information please contact:
Tel : 91+11+3217411 - 13
Fax : 91+11+3217414 or
E-mail: nationaltrust@ren02.nic.in
| Journey
to Empowerment:
A Roadmap for "Special Children", by Kavita Shanbhag |
Foreword
by Dr.Dharmishta Mehta
Reader, Special Education Dept. SNDT University,
Mumbai.
This
resource guide "Journey to Empowerment" serves as a light house 'amidst
the unclear waters of ignorance, feeling of being lost, confused or
unguided. Dissemination of information regarding certain handicapping
conditions in simple words is effective in enabling people to
understand the condition from all perspectives.
I wish all the best to the author in her endeavors and to the parents in their "special journey".
Review
by Dr. Surekha Rajadhyaksha, (MD, DCH),
Consultant in Pediatrics & Pediatric Epilepsy, Deenanath Mangeshkar Hospital, Pune.
We,
as young newly married couples are totally unprepared to bring up a
normal baby. Through errors of commissions and omissions we manage to
bring up our children to the best of our abilities. The challenge
really arises in bringing up a special child. It teaches you patience,
tolerance, empathy and draws us towards the Almighty.
Parents run from pillar to post to seek the right advice, follow it and
wonder ‘are we doing the best for our child’. There are many who offer
advise, sometimes wanted and often unwarranted. One wishes to have more
authentic information. “ Journey to empowerment” is a resource guide
compiled by Ms Kavita Shanbhag which provides the approach to the right
track for help.
This is a book written from the heart of a mother, a special educator,
a versatile creative mind who gives us enormous information. Some of
the phrases used by Kavita are very apt. ‘Children are not disabled but
differently abled’. As mentioned in the book, there are no short cuts.
One has to seek advice from the right person and follow it to enable
your child to be as independent as possible and try to make him a
contributory member of society. The directory for education in
integrated schools, special schools, slow learner schools, for children
with motor disability, visual and the hearing impaired, NOS schools,
vocational training centers, sheltered workshops etc may look
exhaustive but such information is really essential as one should be
practical and seek admission to a centre suitably situated near one’s
residence. The book can be utilized by the health professionals also to
guide the patient to a nearby center.
There are many aspects of legislation one is unaware of, such as
monetary benefits, traveling concessions, tax benefits which one should
honestly and rightfully utilize.
The book offers information which one should use to rise to the
situation and find a path which will make a difference in upbringing
your special child. The book is suitably complemented by the website
which would be updated to provide the latest information in the field.
The book is a must for all caretakers looking after the challenged
child. |
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Yellow
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Yellow is an 2014 Marathi film directed by Mahesh Limaye and produced by Riteish Deshmukh and Uttung Thakur. The story explores a mother daughter relationship and developmental disability and behaviour of a child.
The directorial debut film is based on a true story of Gauri Gadgil, a special needs child, who also plays herself in the film. The film was released on 4 April 2014 to critical accalim. The film second film of actor Riteish Deshmukh as producer after Balak-Palak (2013).
At the 61st National Film Awards, it won the Special Jury Award, while the child actors Gauri Gadgil and Sanjana Rai received Special Mention. |
My Name is Khan
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Shah Rukh Khan is both excited and nervous about My Name is Khan, which, he believes, is his biggest film till date. Khan essays the role of Rizvan Khan who has Asperger's syndrome, a form of autism. "In Asperger's syndrome, one half of the brain is more developed than the other," he says, "So the person ends up thinking very logically as the emotional side is not completely developed. That's the reason Rizvan has problems socialising and is afraid of crowds. In fact, people having Asperger's often find it difficult to show any emotion."
Director Karan Johar and Khan spent several months researching people with Asperger's so that the actor could get the nuances right. "I began reading a lot of books. The Curious Incident of the Dog in the Night-time is one that I read several times. I watched a lot of videos and met several people with Asperger's," says Khan.
Johar spaced out the shooting so that the actor would have time to prepare himself for the scenes. "It took a lot of retakes to get everything perfect and I'm really thankful to Kajol and Karan for all their patience during the shoots," says Khan. The actor says that the movie is not a social-awareness film, "But I hope that it will bring about awareness of the problems that these people face in leading a 'normal' life," he says.
Natasha Sahgal - Indian Express
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| Bilal |
Available with distributors Magic Foundation (magiclantern.foundation@gmail.com) and with director and producer Saurav Sarangi (souravsarangi@gmail.com)
source- Indian Express |
| Aapki Antara |
Aapki Antra is a Zee TV soap opera which premiered on June 1, 2009. The story is about a young girl, Antara, who is diagnosed with autism and her journey of life.Watch Antara from Monday to Friday at 8.30 pm. |
| Black |
Directed by Sanjay Leela Bhansali, the film revolves around a deaf, blind & mute girl(played by Rani Mukherjee to perfection ), and her relationship with her teacher(Amitabh has surpassed himself in the teacher's role) who himself later suffers from Alzeimer's. The first half of the film is an adaptation of Helen Keller's autobiography. |
| Apna Asmman |
a film by Kaushik Roy |
| Yuvraj |
Subhash Ghai movie where Anil Kapoor plays an autistic brother to Salman Khan & Zayed Khan. |
| My name is King |
Karan Johar makes a movie in which Shahrukh Khan plays a person with Aspergers Syndrome. |
Taare Zameen Par |
Produced
and directed by Aamir Khan, this is a brilliantly made movie which tells us about the world of children. Ishaan Awasthi, superbly portrayed by Darsheel Safary,
is a boy in III std who loves fishes, dogs and loves to paint.
But at the same time he hates studies, struggles with reading, writing,
spelling and maths. He is also clumsy, reverses alphabets and has bad
handwriting. He is a puzzle for the teachers and a cause of worry for
the parents. Nobody understands him; he is called lazy, idiot and so
on. Finally he is sent to a boarding school in Panchgani. There he
meets his art teacher Nikumbh (Aamir Khan) who understands that he has
Dyslexia - Learning Disability, since he also has this condition . He
resurrects his lost self esteem through art in which Ishaan is very
good at.
The message is every child is unique with different strengths and weaknesses,
and it is upon us as parents, teachers and society at large to discover their talents
and nurture them. (January '08) |
| Hostel |
A short
documentary film on eye donation.
Director:- Gajraj Rao
Producer: Subrat Ray.
You can watch this film on www.youtube.com and www.giftavision.com |
Aamhi Asu
Ladke
(Marathi Film) |
Producer
Director Abhiram Bhadkamkar has worked with the great sensitivity to
put forward the lives of mentally challenged children. He has combined
the storyline of a successful mother and her unsuccessful son burdened
with expectations who comes across with these challenged children and
how it changes his life for the better. The shooting has taken place at
Chetna Apangmati Vikas Sanstha, Kolhapur. |
Iqbal
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Produced by Subhash Ghai and his company Mukta Films, Iqbal is the
touching story of a deaf-mute boy (enacted by Shreyas Talpade) who
dreams of making it to the Indian Cricket team. His father doesn't
approve of his ambition but his mother and sister support him. And he
finds unexpected help from an alcoholic coach (Naseerunddin Shah).
Nagesh Kukunoor directs this simple, inspiring story supported by
Girish Karnad and Shweta Prasad |
Tera Mera Saath Rahe
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A sensitive film by Mahesh
Manjarekar. A
story of an elder brother with a younger mentally retarded brother
to look after. |
Forest
Gump
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An
award winning film of a youth with cerebral palsy who makes it
big. |
Naache
Mayuri
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A life story
of Sudha Chandran. Her triumph over destiny with the Jaipur foot. |
Sparsh
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Naseeruddin
Shah portrays a blind person. |
Koshish
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The
struggle of a hearing impaired couple and their victory over life. |
| Rainman |
The
story of an adult who is autistic. The role is superbly portrayed
by Dustin Hoffman. |
